Liliana Eleanor, Tomorrow your Mom and I will be meeting with Frederick County Public Schools (FCPS) to notify them if we intend to enroll you in their pre-kindergarten program or keep you in the County’s Infants and Toddlers program for another year. Initially, I didn’t think this decision was going to be a difficult one.… Continue reading Are we ready to send you to school?
I believe at a certain point in our lifetime, we have all used the R-word. We are all guilty here... And yes, being part of the lucky few certainly changes things. We took this word out of our vocabulary when we confirmed Liliana’s diagnosis. We encourage other people to stop using the R-word, but to… Continue reading “Your idea has an extra 21st chromosome”
Happy one month, Liliana! (January 19, 2016) One month ago today Lili was born and our little family was created. We had no idea how much love and excitement we would have for our baby girl. Becoming parents has been by far the most stressful and simultaneously rewarding endeavor either of us have ever experienced.… Continue reading Sharing the news on social media
People react differently when they are faced with new challenges. Some embrace the challenge and want to get as much information as possible to be prepared and others grieve for a longer period of time until they accept it. Unfortunately, some even ignore the situation completely. Whenever you feel ready to talk and meet other… Continue reading What about support groups?
Being out of your comfort zone and experiencing something new can be frightening because you don’t know what to expect. When we received the call from our genetic counselor with the CVS results, we were standing under the Statue of Liberty in NYC. There were hundreds of other people around us but in that moment,… Continue reading After a pre-natal diagnosis